Megan was diagnosed with Neuroblastoma stage 1V in September 03. Following chemotherapy and surgery Megan has been NED since April 04. Megan has been left paraplegic due to the tumour, and also has spinal scoliosis and neuropathic bowell and bladder. Update: March 16, 2006 What a manic week. Megan really enjoyed her birthday. She has been completely kitted out with new clothes for the summer. We had a small family party on Sunday for her. She really is quite funny. When we bought in her cake for her she started sulking and looking towards the floor. I think she just gets embarrased. Monday she was absolutely exhausted from the day before. She had to go to playgroup, but was really grumpy. I thought she might be brewing something but i think shes just turning into a madam now shes 3. Lol. Tuesday we had to take Megan to wheelchair services to try and sort out the lateral support, or should i say lack of it. Now that her scoliosis has progressed to 60 degree, she sits very curved. Her hips are not lined up properly causing other problems. Because her chair is so small its very difficult to find things to add, theres just no-where to put things. The therapist thought they might need to order a new chair, but she just phoned me and they think they have found a solution. Another big problem was the height of her chair for me pushing her. The handles are about 4" to short for me. I have to bend slightly which is no good for me or Mick. Short of doing that i push with one hand, again being no good for my mick. The therapist has said they can supply longer handles but then the handles wont be able to fold down. Ordinarily this would be a problem with the size of my boot, but i get a new car next week, so hopefully problem solved. Health wise Megan is doing great. We go for catherter training next week, not bad since should of been done in January. Megan is also now on bowell management. I have to give her a suppository in the evening and then sit her on the potty. I have stopped all her medicines to make her poo bacause she kept having accidents. We have only been doing this for 2 weeks but so far so good. Shes only had a few accidents. We still havnt heard from Great Ormond Street with a date for surgery but it should be September time. Megan will be due to start nursery in September. Im now unsure what to do because i dont want to get her into somewhere new and then shes off for ages. I think i will probably just keep her at the playgroup she is at now. She loves it there and the staff all no her well. One of Megans little friends had heart surgery on Tuesday. Her mum text me and said things wernt great. The doctors dont hold out much hope and she is critical. She is 3 just like Megan. This is such a cruel world sometimes. Megans article appeared in the local paper last Friday. It was a fantastic story and really raised awareness into Neuroblastoma and the service that the hospice provide. I have been approached by a journalist about her story going in a national paper. Of course i said YES i was interested. Anything to raise awareness into Neuroblastoma, and although Megans has long term problems she is a success. I will keep you updated.