Aschdon
Aschdon has a rare genetic disease
called Spinal Muscular Atrophy Type 2. He was born 7
weeks premature weighing in at only 3lbs 13.9 ounces. He
only had to stay in the hospital for one week, what a
fighter!! All things considered, he was doing good. He
then started passing milestones that I know even for a
premie he should have reached. At 6 months he got
hospitilized for his first pneumonia and things went
down hill from there. Since birth Aschdon has been in
the hospital 5 times for pneumonia and with each one he
has lost more muscle and strength. It took 2 years
fighting with doctors to find out that my son as weak as
he was (and is) could only live until his tenth
birthday. Of course as a determined mom I only take this
with a grain of salt as God only knows when it is time
for Aschdon to come home, until then it is my job to
make him the best person he can be. The hard part of
this disease for me was coming to grips with that my son
would never walk, crawl, sit himself up, be able to just
play like a boy does. My life went from trying to find
out what was wrong to finding out ways to make my sons
life as good as possible. With the help of many on line
friends and some wonderful doctors my son has now made
it his first year with out having to be in the hospital
with pneumonia. We were able to handle it at home. I
hope you will continue to visit this page and keep up to
pace with our fast paced busy lives and watch not only
Aschdon grow and live life but how it affects all of us
on a day to day basis. God gave us life. It is what we
choose to do with our life that makes life worth living.
Please take a moment to visit one of these kids and let
them know they have your prayers
Aschdon's Web Site
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